I figure it finally appropriate to post why I decide to reclaim the term "differently abled" for myself.

I only reclaim it in respect to one of the disabilities I have. Hyperacusis is a different ability, in the respect of how I experience it, but it is also quite disabling. It's fucking terrible, actually. But I think it is a gift at the same time.

If you know me well, I have a motto that boils down to: "clarity with pain is greater than freedom without acuity."

(Of course, I invert this for extreme cases, because I think the idea that I feel like I have to lie in bed for 4 days after going to a party is terrible.)

But the same thing that causes me to want to lie down in bed is the thing that causes me to be able to do great things. I get to have this brilliant sense of discrimination between sounds. I will sit in the rehearsal room, and I know exactly where and how each of the eleven other players is playing at any given time. Because of this, I can't tolerate crowded rooms because every conversation is as clear to me as the one I'm trying to actively participate in.

I can join you immediately in song, knowing precisely how to place myself and blend in, without a piece of sheet music on the stand. But ask me to join you at a convention? That's going to take a 50-page packet, contingency plans, and the realization that you're probably going to find me back in the hotel room at least once during the day because I have to take breaks from using the tools that let me be there.

And those examples are why hyperacusis is, partially, a different ability to me. That level of sharpness and perception may have come partially from training, but the physical part of me had to come first to make that happen.

Shelf

Return to Reflections